Press Kit 

General Information

Title: Living With Fibromyalgia: A Journey of Hope and Understanding
Running Time: 71 minutes
Format: Digital video
Aspect Ratio: Widescreen (1.78:1)
Release Date: Nov. 2006
Production Company: Trillusion Media, Inc.
Original Language: English
Special Features: Extended interviews and trailer
Producers: Stephen Eyer and Daneen Akers

Synopsis

An honest, hopeful and highly practical resource for fibromyalgia patients and their families.

When the mysterious pain and debilitating fatigue plaguing a loved one is diagnosed as "fibromyalgia," the first reaction is usually relief at finally having a name for the pain followed by confusion as everyone scrambles to get information. What does a diagnosis of fibromyalgia mean? Is there hope that things will get better?

Filmmakers Daneen Akers and Stephen Eyer asked these questions when Daneen's mother was diagnosed with fibromyalgia several years ago. After watching their family search for answers, they decided to make a film about their own journey for understanding and hope. They interviewed doctors, experts, and most importantly, Daneen's mom and other fibromyalgia patients from diverse backgrounds who share their own stories of learning to survive and even thrive with this illness.

The result of over two years of interviews and research, Living With Fibromyalgia is the film they wish their family could have watched together when they first heard the word "fibromyalgia."

Filmmaker and Participant Bios

Filmmaker Bios >>
Participant Bios >>

back to top

Quotes
"Living with Fibromyalgia is the first documentary to explore the most intimate feelings and life-altering experiences of seven individuals living with the daily challenges of fibromyalgia. It will make you laugh and cry- a must see for anyone who is living with or knows someone with fibromyalgia."
- Lynne Matallana, Founder/President, National Fibromyalgia Association

"This film only tells the story of seven people, and yet you've told my story. You've told my story. You've told the story of millions." - Sharon Squires, RN and fibromyalgia patient

"I do not have the correct words for it, but I feel more alive and full of hope and more 'normal'-not crazy-since seeing your documentary. Thank you. It gave me the confirmation I needed to continue to put my health first and to know that I'm not lazy and never have been. Thank you again!" - Becky Anderson, fibromyalgia patient

"I'm so thankful I watched this film - it was eye-opening. This film inspired me to get educated and get involved with my mom's recovery." - Candice Gilliam, daughter of fibromyalgia patient

Read more quotes on the Feedback page >>

back to top

Press Releases and Film News

May 6, 2007: Grassroots Efforts Results in Documentary by Local Filmmakers Screening Nationwide for Fibromyalgia Awareness Day (Downloads in Microsoft Word)

May 2, 2007: Film Featured in the Register-Herald

May 1, 2007: Film Featured on Chronic Babe

April 23, 2007: NFA Hosts San Diego Premiere of Living With Fibromyalgia

April 23, 2007: Filmmaker Shares Her Motivation for Making Documentary

March 12, 2007: Filmmaker and Mother Interviewed on Inside San Diego

Dec. 6, 2006: Film Offers Hope to Those in Pain (San Diego Union-Tribune)

Nov. 28, 2006: Living With Fibromyalgia Gets Rave Reviews at Premiere

Nov. 20, 2006: Faculty Premiere Film

Nov. 10, 2006: SF Filmmakers Sell House to Fund Fibromyalgia Film (Downloads in Microsoft Word)

back to top

Press Photos


Darlene, the inspiration for the film, and Daneen, Darlene's daughter and one of the film's producers, relax after shooting the last scene of the film.


Darlene and Daneen enjoy some lemonade after shooting


Behind the scenes at the Matallana's house in Orange, CA.


Frances Jenkins, an actress and the model for the 40th anniversary edition Black Barbie, knows the particular challenges of dealing with an invisible illness--she doesn't look sick.


Lynne and Richard Matallana during an interview. She started the National Fibromyalgia Association from her bed 10 years ago


Lauren Armistead, one of the featured FM patients, works out with her trainer.


Liana Gefter, a medical student at Stanford, hopes to someday be a doctor who doesn't demoralize or belittle pain patients.


Randy Wold deals with having an illness that many think of as a "woman's disease".


Linda Farwell, one of the featured FM patients, chats with Daneen.

back to top


Filmmakers and husband and wife producing team, Stephen Eyer and Daneen Akers.

DVD Cover Art



Contact Information

Stephen Eyer - Producer/Director
Daneen Akers - Writer/Producer
Trillusion Media, Inc.
San Francisco, CA
Production Company Website: http://www.trillusionmedia.com
Film Website: http://www.LivingWithFM.com